Privacy Policy
Your privacy is important to us. This policy explains how we collect, use, and protect your information.
Last updated: November 21, 2025
1. Information We Collect
Personal Information
When you create an account, we collect:
- Name and email address
- Account type (patient or caregiver)
- Age range (optional)
- General occupation history (optional)
Health Information
If you choose to use our health tracking features, we may collect:
- General diagnosis date (optional)
- Type of mesothelioma (optional)
- Treatment status (optional)
- Daily health ratings (pain, energy, mood)
- Symptom tracking information
- Medication lists (optional)
Important: We do not collect Protected Health Information (PHI) as defined by HIPAA. All health information is voluntarily provided and stored in a de-identified manner.
2. How We Use Your Information
We use your information to:
- Provide personalized support and resources
- Enable health tracking and progress monitoring
- Send relevant educational content and updates
- Improve our services and user experience
- Respond to your questions and support requests
- Ensure platform security and prevent fraud
We will never: Sell your personal information, share your data with third parties without consent, or use your information for commercial advertising purposes.
3. Information Sharing and Disclosure
We Do Not Sell Your Information
We do not sell, rent, or trade your personal information to third parties for commercial purposes.
Limited Sharing
We may share your information only in these limited circumstances:
- With your consent: When you explicitly authorize us to share information
- Service providers: With trusted partners who help us operate our platform (under strict confidentiality agreements)
- Legal requirements: When required by law or to protect rights and safety
- Aggregated data: De-identified, statistical information for research purposes
4. Data Security
We implement industry-standard security measures:
- Encrypted data transmission (SSL/TLS)
- Secure password hashing
- Regular security audits and updates
- Limited access controls
- Secure data storage practices
Note: While we use best practices to protect your information, no internet transmission is 100% secure. Please use strong passwords and keep your login credentials confidential.
5. Your Rights and Choices
You have the right to:
- Access: Request a copy of your personal information
- Update: Correct or update your account information
- Delete: Request deletion of your account and data
- Export: Download your health tracking data
- Opt-out: Unsubscribe from communications
- Restrict: Limit how we use your information
To exercise these rights, contact us at privacy@mesotheliomacompass.com
6. Cookies and Tracking
We use cookies and similar technologies to:
- Keep you logged in to your account
- Remember your preferences
- Analyze website usage and performance
- Provide personalized content
You can control cookies through your browser settings. Disabling cookies may affect some platform features.
7. Children's Privacy
Our platform is not intended for children under 18. We do not knowingly collect personal information from children. If you believe a child has provided us with personal information, please contact us immediately so we can delete such information.
8. International Users
If you are accessing our platform from outside the United States, please be aware that your information may be transferred to, stored, and processed in the United States where our servers are located and our central database is operated.
9. Changes to This Policy
We may update this privacy policy from time to time. We will notify you of any material changes by posting the new policy on this page and updating the "Last updated" date. We encourage you to review this policy periodically.
10. Contact Us
If you have questions about this privacy policy or our privacy practices, please contact us:
Privacy Officer
Email: privacy@mesotheliomacompass.com
Phone: 1-800-MESO-HELP
Mailing Address:
Mesothelioma Compass
Privacy Department
123 Health Support Lane
Support City, SC 12345